What Will This Administration Do About Sickle Cell Disease?

Sickle Cell Disease (SCD) remains a significant public health concern, disproportionately affecting Black Americans, with an incidence of 1 in 365 births. Advances in gene therapy offer unprecedented hope for a cure, but accessibility and cost remain critical issues. Recent discussions between Senator Tim Scott and Health and Human Services Secretary nominee candidate Robert F. Kennedy Jr. on January 30, 2025, suggest that SCD will remain a priority for federal health agencies under the new administration.
Commitment to Continued Federal Support