Canadian National Parkinson’s Registry Seeking Participants to Help Advance Treatments

Canadian National Parkinson’s Registry Seeking Participants to Help Advance Treatments

Parkinson Canada now invites individuals living with Parkinson’s disease to join the Canadian Open Parkinson Network (C-OPN), a solution to improve lives for those living with Parkinson’s and ultimately to help discovery a cure.

Phase One of the Registry & Biobank

The patient registry will be deployed in phases. Phase one of C-OPN brings together many of Canada’s best in Parkinson’s research with eight clinical investigational sites taking part in four provinces, giving investigators access to unprecedented data. This database and associated biobank will support large scale, multidisciplinary projects that would not be possible at a single research site.

Parkinson Plus (Atypical) Syndrome

To ensure greatest impact, the network needs people with Parkinson Plus (Atypical) Syndrome across Canada to register and participate in progressing science forward at a more rapid pace. As a participant in the network, Parkinson’s patients will have the opportunity to:

  1. Participate in the creation of a national database collecting critical information from people with Parkinson’s disease or Parkinson Plus Syndrome for researchers across Canada.
  2. Participate in the creation of a national biobank for Parkinson’s disease or Parkinson Plus Syndrome for researchers.
  3. Learn more about research opportunities happening across Canada and contribute to findings and new outcomes that could change the future of Parkinson’s care and treatment or that can ultimately lead to a cure.

Birth of C-OPN

C-OPN was created via a $2 million Brain Canada Platform Support Grant. $1 million was provided by Brain Canada in partnership with Health Canada through the Canada Brain Research Fund and this was matched by a $1 million investment of funds supplied by generous donors to Parkinson Canada, who led the project.

Lead Research/Investigator

Dr. Oury Monchi, professor, Clinical Research Director, University of Calgary, Hotchkiss Brain Institute, Canada Research Chair and Tourmaline Chair in Parkinson’s disease, Department of Clinical Neurosciences at University of Calgary’s Cummings School of Medicine, Principal Investigator

Call to Action: Interested in signing up? Note that due to COVID-19, all research presently is conducted remotely, and joining C-OPN can be done from the comfort of your own home. If interested in participating, click the link and fill out the information to be connected to a research coordinator at the site closest to the registrants address. Select this link for more information.