The Brain Health Registry (BHR) is a 14-year longitudinal study of over 1,500 subjects at 60 sites across the United States and Canada, and one of the largest observational studies in the world using MRI, PET and biomarkers to study Alzheimer’s Disease. Principal Investigator (PI) Michael Weiner launched BHR five years ago as a low-cost, scalable approach in response to the “Very expensive, high tech approach” of DNA to studying Alzheimer’s reports Forbes. Weiner also the PI for the NIH-funded Alzheimer’s Disease Neuroimaging Initiative (ADNI).
The BHR’s questionnaires and brain tests serve as tools that help researchers identify normal elderly people at risk for cognitive decline and dementia and provide data to facilitate the work of other investigators.
Lack of Volunteering Slows Down Alzheimer’s Research
Weiner notes that a lack of volunteers has slowed down Alzheimer’s research. There just isn’t enough volunteers for research studies. A death of diversity compounds the problem. Alzheimer’s research lack African America, Latino and Asian participants.
Over 62,000 participants have already enrolled in BHR and sponsors now increase that number to 100,000 or more this year. Participation is simple and straightforward, and requires just 30 minutes of a participant’s time twice a year. As Forbes reports, they simply need to contribute to some questionnaires and brain tests. Thereafter, BHR investigators will observe and study the brain health changes over time.
We include link to Dr. Weiner to hear about the importance of participation in Alzheimer’s research.
The overall goal of this project is to identify, assess and longitudinally monitor subjects who are interested in participating in brain research. Participants will enroll through the website, BrainHealthRegistry.org, and provide informed consent prior to any study activities. The website will collect a variety of information, including participants’ overall health, memory complaints, family history of dementia and Alzheimer’s disease (AD), mood status, sleep, diet, and exercise—all through self-reported online questionnaires. Participants will also be asking to take online cognitive tests, and to return to the website at regular intervals, to complete follow-up questionnaires and neuropsychological assessments. Everyone over the age of 18 is welcome to participate. To join the Brain Health Registry, please visit Brain Health Registry.